Ode to the Parents (Now I Understand)
An ode to the parents who held steady through fear and exhaustion, reminding them their presence becomes the memory long after the hardest moments pass..
Posts related to JRA, its history, terminology, and my lived experience growing up with this diagnosis.
An ode to the parents who held steady through fear and exhaustion, reminding them their presence becomes the memory long after the hardest moments pass..
A reflection on the quiet strength we learn in childhood. The kind built in hard moments, carried into adulthood, and rewritten with softer wisdom as we heal.
Becoming an adult with Juvenile Arthritis means carrying a childhood diagnosis into a world that assumes you’ve outgrown it. This post explores the transition from pediatric to adult care, the misunderstandings, and what it really means to live forward with JRA or JIA.
Juvenile Arthritis Awareness Month is a time to highlight the realities of juvenile idiopathic arthritis, once known as JRA. In this post, I share five things I wish more people understood about growing up with this condition, shaped by both lived experience and gentle honesty.