Posts related to JRA, its history, terminology, and my lived experience growing up with this diagnosis.
A reflection on growing up with juvenile arthritis and why sharing my lived experience matters. From early diagnoses and shifting medical labels to the emotional realities of long‑term healing. This post opens the door to my journey and the purpose behind creating a space for connection, understanding, and honest storytelling.
A glimpse into my earliest years with JRA. Not to relive the pain, but to show parents what children often carry forward, what they don’t, and the small moments of resilience that shape us.
A look at the pressure parents face when making major medical decisions for their child and how, years later, we come to understand their courage, their fear, and the trust that held us together.
A look at how children with chronic conditions push boundaries to feel normal and why parents, despite their fear, often need to let them try. This story explores resilience, belonging, and the emotional balance between protecting a child and allowing them to grow.
